Friday, August 7, 2009

Back-To-School (With Patients)

*To see more entries in the 'Patients for a Moment' blog carnival (8/12/09), visit Adventures of a Funky Heart.

As we gear up for the new school year, I can’t help but contemplate what it must be like to have ‘healthy’ children. If you weren’t reading this, and you came to our home for a visit, you would assume the children were just ordinary run-of-the-mill kids. They run and play and fight like any other sibling group. They are great, great kids, but they do have their fair share of medical issues.

I can’t imagine what it might be like to think about back-to-school and not think about IEPs, medication authorization forms, speech, OT, and physical therapies.

As I write out an explanation of Asperger’s Syndrome for my son’s new teacher, I wonder if she will take the time to read it and really understand what it means. Will she look past his differences and find the really great kid just under the surface? I hope so.

As I go over my younger son’s complex congenital heart disease and Autism with his new teacher and the school nurse, I wonder…will they be able to relax around him due to his condition? Will they panic if he has an arrhythmia episode? Will they be over-protective? Or will they fall for his charm and personality and ignore the scar on his chest? I hope so.

I haven’t even mentioned the epilepsy, and the asthma, and the ADHD….

This is our reality. And the truth is every day is a blessing as we juggle inhalers, allergy meds, aspirin therapy, anti-seizure medication, therapies, and doctor appointments.

How can a person truly appreciate how much she has unless she genuinely understands how close she comes to not having it at all?

Maybe this is my way of finding acceptance. I have to admit that I think I have an insight that the mother of healthy children is missing. (And missing out on.)

Just something to ponder…

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