Thursday, October 1, 2009

One Year Ago...

Can you believe it's October? Crazy how time flies. One year ago we were in a very busy season. It was a 'hurry up and wait' season and those are so draining. My little one had been undergoing testing at two different children's hospitals to plan for his upcoming heart surgery. Since we had expected surgery at birth, we were so thankful that we had been able to wait and watch for nearly three years. But, on the other hand, we waited and watched for three years! Three years, ya'll.

We spent the majority of 2008 waiting for:

  • his cardiology team to decide on a plan of action-what surgery and what type of ablation for his SVT problem
  • a surgery plan for an unrelated condition
  • testing and evaluations for a developmental diagnosis (PDD-NOS received in September 2008)

On October 1, 2008, my little one had begun therapies for Autism and had the extra surgery under his belt the day before. Literally. It was a urology surgery. (Under his belt. Get it? I crack me up....)

October 1st was my little one's first day without taking medication for his arrythmia issues. The first day in, ohhh.....two and a half years. He started taking meds for SVT when he was four months old. We spent several weeks making middle-of-the-night ER trips, he and I. PICU, ER, PICU, cardioversion, and on and on. Exhausting. We spent 3 weeks straight inpatient for his doctors to wean one med, add another, then another. More weaning and loading and, thankfully, in only about 3 months or so, the SVT was managed by the meds. With no breakthroughs. We were, and still are, so thankful!

And now I'm back to October 1st, 2008. No meds. Med-free. It felt scary and strange. There were eight weeks until his heart cath and ablation. That was the plan. Heart cath and ablation in December, cardiac conference on the results, and then on to surgery. Would he make it without any problems? We were hopeful, but nervous. So was his cardiologist.

Not only did he make it without an SVT episode, but his EP cardiologist was unable to ablate. He couldn't get any type of reaction during the cath. His doctors were cautiously optimistic that perhaps the little one had outgrown this problem.

Which brings me to today. October 1st, 2009. One year later. Of course, if you've been around here, you know the story. My little one's heart surgery was planned and performed in February. His surgeon performed what is called a 'one and a half ventricle' procedure, moving his vena cava (Bi-directional Glenn), partially closing his ASD, and removing some pulmonary obstruction. And we came home 3 days later! We couldn't ask for a better experience (for an OHS, that is).

October 1st.

I wonder what this next year holds for us?

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